SOAR!

The “In Between” Moment

Me Ra Koh

I’m so glad that Lynda’s video inspired so many of you.  Isn’t she amazing?!  She is a wonderful representation of one of many beautiful, awesome stories from last year’s SOAR! applicants.  I have a feeling those stories are going to multiply with this year’s applicants.

We are in that “in between” moment for SOAR!’s new year.  Our team is putting on the final touches to a video so you can meet the new recipients.  We are all so excited for this next step to happen, and the new year to officially start!

In the meantime, I’d like to announce the Running on Empty for the upcoming Seattle CONFIDENCE Workshop.  This contest means so much to me because my heart knows what it’s like to feel as if you are running on empty while trying to do your best with what you’ve got as a mom.

There were more submissions than ever for the ROE contest.  Every entry was incredible to read–such amazing perseverance from so many women.  The panel of judges were, again, amazing.  The job is never easy, and we are so thankful for the heartfelt time. When they emailed me the winner, I cried.  Her story is heartbreaking, and if any mom deserves a break, a weekend of being filled up and given to, it’s this mom.  For Seattle, the Running on Empty winner is Claudia.  Her story was and is incredibly moving.  I can’t read it without crying as I hear the heartache in her words.  I have copied Claudia’s story below so you can welcome her in today’s comments.  This is a woman that defines the word Courage.  Claudia, Brian and I welcome you to the Seattle CONFIDENCE Workshop.  We hear that you are flying in from CHICAGO!  Wow!  And that’s not all, a big thanks to Sue Christianson, one of our SOAR! Applicants from last year.  Sue has graciously offered to open her home to Claudia for the weekend.  Have I said how much I LOVE this community?!!  To read Claudia’s moving story, see the p.s.  You can also see a more intimate view of her story here.

So much to talk about in the coming weeks, like a recap on our first CONFIDENCE Workshop of the year!  Brian and I had a moving, powerful weekend with the OC/LA CONFIDENCE Workshop this last weekend.  If this first workshop for 2011 is an indication of what the rest of this year will be…we are off to an amazing start.

In our “in between” time, we had the opportunity to catch up with family in Ventura, CA.  The cousins played on the beach every day while mom and dad went to teach the workshop.

As we fly home we are already missing them but so thankful for the magical window of time we shared.  (love you Carm, Gregg, Zoe and Jude)

xoxo,

m

Claudia Constantino says:

With the sincerest humility and gratitude, I respectfully nominate myself to attend the Seattle Confidence workshop. 2010 was the most difficult, painful year of my life. In 2011, I hope to pick up the pieces and find happiness again. If I were chosen to attend the conference, it would give me the opportunity to reconnect with one of my greatest passions, photography. I fell in love with photography when my children were born. I was blessed with two beautiful daughters, Lindsey (born in 2004) and Ashley (born in 2006). I loved having my children photographed often. I felt like each photograph captured a fleeting moment. Through photographs I felt I could capture moments, smiles, and memories that might otherwise be forgotten. In connecting with other photographers, I quickly became interested in studying photography. Sadly the events that were to follow over the coming years would prevent me from pursuing that interest. Shortly after her second birthday, my daughter Ashley was diagnosed with a rare and aggressive form of pediatric cancer. Our lives changed dramatically in an instant. We were given the option to not pursue treatment because her prognosis was so poor. She had a less than 5% chance of surviving this rare and aggressive cancer. Weeks before we had been celebrating her birthday in Disney World, and here we were being told that her time with us would likely be brief. I remember wanting to scoop her up in my arms and run out of the hospital and get on the next plane back to Disney to make as many lasting memories as possible. She was immediately scheduled for surgery. The tumor was wrapped around her spinal cord and was invading her lung cavity in such a way that the threat of paralysis was imminent. Within days of this surgery she began a rigorous treatment protocol that involved multiple surgeries, 18 months of chemotherapy, 3 months of radiation, countless visits to the ER, every major holiday spent in the hospital and countless hospitalizations. Throughout her treatment we probably spent 100 nights at Children’s Memorial Hospital in Chicago all the while spending time apart from my husband and 5 year old daughter Lindsey. I always did my best to be strong and put on a brave face but the moment someone asked me how Lindsey was doing I would burst into tears and my heart would break. I was always felt so torn and wished I could clone myself and be with both daughters at the same time. If I was in the hospital with Ashley, I felt like I was missing huge moments in Lindsey’s life. For nearly 18 months I felt like I was living through hell on earth, like my family was being torn apart, but yet Ashley kept me strong. Ashley gave me courage. She went through all her treatments with a smile on her face. When she was going through radiation she’d wake up at 4am giggling and smiling before our hour long drive to the hospital each day. If she needed an IV she’d sweetly extended her arm for the nurse. If she required medication by mouth, she’d swallow it down and simply ask for some juice. She smiled as the nurses connected her “tubbies” (access to her port) to the pump that would administer her chemo. She smiled as she woke up from each surgery. Her doctors came to me and said “Ashley is a miracle. She’s handling the most aggressive treatments and we believe she will beat this.” We had let our hearts believe that everything would be okay, but our worst fears were realized just days before Thanksgiving (2009) when her oncologists said her tumors had returned and we were out of treatment options. This is every cancer mom’s worst nightmare. Treatment itself is hell, but you go through it all in hopes of ridding your child of this horrible disease. On February 5, 2010, my sweet girl lost her battle to cancer. She died in our home in my arms. My heart will forever be broken. We go through each day with a huge gaping hole in our hearts. My older daughter Lindsey who is now 6 misses her little sister terribly. She knows more about cancer than any child should ever have to know. I want to continue to be the best mother I can be to Lindsey and I want to capture and document every special moment of her life. We recently had a mini-getaway over the holidays and Lindsey borrowed my camera the entire trip. I loved seeing her excitement and passion for photography. It warmed my heart greatly when she said she wants to be a photographer when she grows up. I love that we share that passion and that bond. It seemed like my camera was collecting dust for those 2 years when our lives were lived out of a suitcase going back and forth to the hospital. In 2011, I’m hoping to reconnect with myself again and I truly believe that attending your Confidence Workshop would help me do so. Thank you for taking the time to read my entry.

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  1. Tammy Snyder says:

    {{deep breath}}
    Claudia~It is with heart felt compassion and love that I write to you and extend a great big hug. First with deepest sympathy of the painful loss to you, your husband, your daughter and families. You are running on empty and am so glad to hear that you are going to the workshop. I am confident that it will be such a blessing to you and in return bless your six year old daughter as well. I pray that God will continue to heal you and your family and you will find peace and healing through your photography.

    Much Love and Compassion…

  2. Claudia–I just dont have adequate words except that I will be praying for the heartache and pain your family endures. I am so thankful you will get to go to the workshop–no doubt Me Ra and Brian will be a blessing and I want you to know that sweet Sue will also be an unbelievable blessing!!!! You are going to be completely surrounded in love. That makes me so happy for you. I pray this will be a source of joy! Love to you and many prayers…

  3. Claudia, my heart goes out to you and your family. How strong you ate to get up each day and love Lindsey, and your husband. And above that you are still able to dream. You my dear are simply amazing. I was reading your story rooting for Ashley, and tears welled in my eyes at your loss. I hope to meet you some day and give you a big hug. Now I must go hug my kids, because your story has reminded me of how lucky I am. Please give lots of love to that little girl of yours, what a great name ; )!!

    Shine On, Lindsay

  4. Claudia –

    Your strength of spirit is inspiring and your courage…leaves me in awe. I too will hold you and your family in my prayers as you take the steps to finding renewed purpose in your life. You certainly came to the right place with this workshop and this community. It is a place where you can begin to find fuel for your passion, support of your dreams and yourself again.

    Hoping all that and more for you,

    Lisa

  5. One needs to proof read more. Goodness. It should be “how strong you are”, not ate.

  6. Terri says:

    Claudia,
    Your story is heartwrenching. I am so thrilled you were chosen for the workshop (even though I was nominated & praying to be there- given the choice, I would have gladly handed my seat to you) May you be blessed with strength, confidence & joy through this workshop, finding a sense of happiness behind the lens & in the face of Lindsey & your husband. 🙂

    Me Ra, thank you for so generously blessing others!!

  7. Natalie Johnson says:

    Claudia,
    I read your story a week or so ago and it broke my heart and now I read it again and tears roll as I went to your blog to see your beautiful Ashley. What a darling little girl! I will be praying for your family as you all continue to walk forward this year. I know this workshop is going to help restore the brokenness in your soul. It happens to be around the year anniversary for you and your family and I am so glad you will be with a group of women who share your passion and will envelope you with love. You are doing the greatest thing for your daughter Lindsay and husband in taking time to help restore yourself. I am looking forward to seeing your photos and hearing what the weekend does for you. You will have to post on the Soar Forum so we can all see.
    Blessings and prayers to your family!

  8. shawna says:

    Oh, how do you even respond to heartbreak like this? Claudia, my heart goes out to you and your family. I hope this weekend will bring you the light and love you need to get through this tragic anniversary. hugs to you and may you find healing and a new balance this year.

  9. Laura Hanis says:

    Claudia, I am so glad you were chosen for this workshop. Even though I nominated myself, after reading your story I prayed that the judges would choose you. Never could I even began to imagine losing my child. As one mother to another, my heart aches for you and I hope that this workshop will inspire you and fill you up. Enjoy every minute!

  10. I hate cancer. No one should have to face what you or your family did (and still are facing). I pray that this workshop gives you just what you need…whatever that is. Love to you.

  11. Helene says:

    Claudia, I’m so happy for you that you were chosen to attend the Seattle Confidence Workshop and how wonderful that you’ll be staying with a SOAR Sister and her family!!!! I hope you will write a post or too about your weekend…. wishing you peace & strength xo

  12. Natalie Johnson says:

    p.s. We are going through cancer with my daughter’s best friend right now, 15 years old, and when you said you had 18 months of treatment I gasped! I am seeing first hand the appointments, blood draws, hospital visits for chemo, and the overwhelming toll it takes on all the family members. So I understand when you said you were feeling torn to be with one child while away from another. I have tried to help this family by picking up the other siblings and getting them where they need to be. You so deserve this with all you have been through. Mera and Brian have such big hearts to offer this for you, and welcome to the Northwest:)

  13. Praying for dreams, desire & joy to come alive again that there would be healing of the soul through your trip to Seattle.

  14. Samantha says:

    Claudia, May your weekend with Me Ra, Brian, and the other women who will surround you be a time of healing and peace.

  15. Michelle says:

    I know that the workshop and your time with Me Ra, Brain and the rest of the ladies will bring you what you need.

  16. Summie Roach says:

    Claudia-thank you for opening up your heart to the rest of us. WOW is all I could muster up as I read your heartfelt story. You may be empty now, but I am excited for you to be filled up again, inspiring others along the way. We don’t realize how we inspire, motivate and encourage others during our own storm. I am so glad to see your positive attitude even during your heart break. Although I don’t know you, I will be praying for you and your family this year! I hope you and your family will find healing in your hearts as you start capturing every day moments of your life and begin reliving those stories. Many hugs to you!
    -Summie-

  17. jeramy says:

    claudia. i am so incredibly sorry for your loss. losing a child makes no sense. there is no logical resolution. but i can tell you that you will get through it. hold tightly and treasure your family and moments you have with them. know that you are not alone. take care.

  18. Andrea J says:

    Claudia, what a heartbreaking story. My heart goes out to you and your family. What a helpless feeling it must have been to not be able to “fix” Ashley, to bring her home and live a normal life. And to feel that you were missing out on your other daughter’s childhood. Your story stuck with me all day when I first read it. I am so happy you were chosen to come to the workshop. I hope that it will be a place of love, joy and healing, of renewed passions, and a beginning to mending and filling up the huge hole in your heart. I look forward to meeting you at the end of the month!

  19. Amy Keffer says:

    Claudia, I have no words. There’s no way to really express how my heart aches for you and longs for a way to comfort you from a loss no parent should have to bear. Please know that you’ve touched so many and that my love and prayers are with you.

  20. Cyndi says:

    Claudia,
    I am so glad you were chosen for the workshop. Wow, I have no words, and cannot tell you how much my heart goes out to you. I pray for you and your family, and know that her short time on earth has had an impact on everyone she knew, and who knew about her. Even now, her (and your) story has blessed me. Keep telling this story, let her spirit live on. I will share this story too, and help keep her little spirit alive in the strength she displayed.
    Gosh, I am so very sorry for you.

  21. suzan s says:

    Dear Claudia,
    I had the opportunity to read your nomination this afternoon. It must have been difficult to write, not knowing if you would be heard and chosen. I know there is nothing I can say that will even come close to making you and your family feel better. All I could think of while reading it was, the one year anniversary is coming up. I literally had goose bumps on my arms. I am so glad you reached out at this time, even better that you will begin to reconnect with yourself and inspire your daughter to reconnect with herself too. I wish peace and grace for you and your family. Thank you for sharing seems so inadequate to say, but it’s true. Peace Be With You.

  22. Delanae says:

    Dear Claudia,

    Amazing strength you showed in just your ability to write your letter. I almost lost both of my children during pregnancy / birth and that was scary enough.

    Welcome to the SOAR sisterhood. I’m going to make sure to give you a big hug, sure hope you’re a hugger! 🙂

    See you VERY soon! YEAH!!!

  23. And here I am crying at work – I hope no one walks by. 🙂 So glad that Claudia has this opportunity – you have more strength that you know!

  24. Claudia ~

    I read your entry letter yesterday. Your words are so powerful and your loss heart wrenching. To be honest I couldn’t find the words to respond till now. I am so very sorry for your loss. I can not image the pain your family was and still must be going through. I join with the many others in praying that the weekend shared with MeRa will be the beginning of deep healing, hope and restoration in your inner most being. I’m sure your precious Ashley would be thrilled to know that her momma received such a blessing, in hopes that her mommy would find joy and be able to laugh and smile and begin to dream again. I also want to share a gift that your little girls life and passing has given me, my family and I’m sure countless others. She has woken me up. Your pain has reminded me in a special way that each one of us is special and that life is precious and meant to be treasured, savored and cherished. Thank you for for reaching out and being willing to move forward even when it is so hard. Much peace, love and healing to you and yours each and every day. The Blessings ahead are infinite!

  25. Jody says:

    Claudia, thank you for sharing your story. It was heart wrenching. I am praying that 2011 brings you much joy!